Job Description:
The National Hemophilia Program Coordinating Center (NHPCC) is a Health Resources and Services Administration (HRSA)-funded program that supports a collaborative and integrated national infrastructure of 8 regional hemophilia networks (RHNs) which serve 140+ hemophilia treatment centers (HTCs) across the nation. The NHPCC goal is to increase access to and quality of care for people with blood disorders. The NHPCC is beginning a new five-year grant cycle, with a focus on quality improvement in two areas 1) the transition from pediatric to adult care and 2) improving health equity via identifying underserved and unserved persons with bleeding disorders and developing and implementing changes to improve their access to and experience in receiving care. This work will be achieved with the support of and partnership with an active coalition of RHN leaders with multiple workgroups and committees.

The NHPCC Director is responsible for the strategic development and leadership of the NHPCC. This includes, but is not limited to, collaborating with HRSA and the RHNs to identify gaps in services, standardize and improve access to care, and share best practices through the creation and execution of national initiatives. The NHPCC Director is responsible for analyzing data and trends to support program evaluation and health promotion activities. The NHPCC Director is a critical member of the ATHN Office of Public Health Initiatives and is responsible for maintaining stewardship of ATHN’s relationship with external partners. The NHPCC Director will report to the Senior Director of the Office of Public Health Initiatives manage and work closely with the NHPCC Program Manager.

Job Responsibilities:
• Contribute to strategic thought leadership, planning, and execution to drive NHPCC programmatic success.
• Build meaningful relationships with coalition of collaborators, workgroups, and committees.
• Facilitate the development of national quality improvement initiatives to support the hemophilia community.
• Support stakeholders in the development and implementation of quality improvement strategies and tools.
• Identify and problem solve barriers to implementation of national initiatives.
• Oversee the development of tools, templates, and other materials designed to support the success of NHPCC goals.
• Assume primary responsibility of the development, execution, and monitoring of the NHPCC federal grant.
• Supervise and direct the work of NHPCC program staff, consultants, and interns.
• Oversee project delivery schedule and budget activities in alignment with NHPCC goals.
• Develop and execute innovative and forward-thinking publication strategies and health promotion efforts to share best practices.
• Use data to assess needs and measure success and impact.
• Manage the communications activities of the NHPCC program including publications, social media, and other methods of communication and outreach.

Required Experience/Qualifications:
• Master’s degree in of public health, nursing, or related field
• 3-5 years’ experience in healthcare, public health, or related field
• Experience leading and working with coalitions or diverse collaborators
• Experience leading quality improvement projects
• Experience in grants management
• Excellent interpersonal skills, with strong oral and written communication skills.
• Ability to work in a collaborative, multidisciplinary environment and to be self-motivated

Preferred Experience/Qualifications:
• Experience leading quality improvement projects in clinical settings
• Experience in federal grants management
• Experience in blood and/or bleeding disorders
• Supervisory experience
• Experience in health equity programming
• Ability to use data to assess needs and measure success and impact

Cultural Success Factors:
• Collaborative – Thrives as part of a diverse team environment.
• Honest – Communicates plain and truthfully. Does not cut corners ethically.
• Organization – Able to focus. Plan the work and deliver the plan.
• Analytical – Balances the right abstraction level and attention to detail.
• Proactive – Brings new ideas and gets work done.

Travel: As needed to attend staff meetings and conferences. Note: As an organization dedicated to serving persons with rare medical conditions, we take health and safety seriously. All staff that are traveling or meeting in-person for ATHN business must be fully COVID-19 vaccinated and boosted.
Salary Range:  Starting salary $100,000 – $120,000, commensurate with experience.
Availability: Immediate
Contact: Interested parties should send their cover letter, resume, and statement of qualifications (combined into one PDF) to ATHNjobs@athn.org with the subject line “NHPCC Director”.


About ATHN (The American Thrombosis and Hemostasis Network)

About ATHN:
The American Thrombosis and Hemostasis Network (ATHN) is a non-profit, 501(c)3 corporation founded in July 2006. ATHN provides a national informatics platform and public health services that support clinical care and outcomes analysis, research, advocacy, and public health reporting in communities impacted by rare hematologic disorders. ATHN partners with a network of over 146 affiliated clinical sites (ATHN Affiliate Network) conducting research, surveillance, and quality improvement initiatives. In addition, ATHN partners with government programs, community-based organizations, and industry, with the ultimate goal of improving the care and quality of life for those affected by rare hematologic disorders.

ATHN is a virtual organization, meaning that the entire ATHN staff are remote workers. We rely on modern communication tools to create a collective sense of purpose and stay connected with each other. If making a difference in the treatment of rare disorders excites you, we encourage you to apply.

Why You’ll Love Working at ATHN:

  • Culture: We are a humble, mission driven team that is focused on collaborative, data-driven success.
  • Contribution: We love new ideas and give you the opportunity to apply your knowledge to enhance organizational success.
  • Growth: We are expanding - launching new services and projects to support the needs of our stakeholders.

What We Offer:

  • The chance to work in a collaborative environment with diverse, experienced team members and leaders.
  • An environment where you can expand and leverage your skills to make a real, measurable impact.
  • Competitive salary that is commensurate with experience.
  • Competitive benefits package including health/vision/dental insurance, retirement 401k match benefit, and paid time off.
  • Fully remote work environment.