Overview

Why LLS

How many people can answer the question, “What do you do for a living?” with the answer, “I help find cures for cancer.” At LLS, employees take our mission seriously. Whether you work in one of our chapters, are an accountant at the national office or a specialist in our Information Resource Center, you work each day on making our mission a reality: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. Join us and give new meaning to the word, “job.”

Overview

The Executive Director for The Equity in Access Research Program (the “Program”) will lead the continued development and implementation of this new extramural blood cancer-focused health services research funding program, which aims to fund research that deepens understanding of modifiable barriers in access to care for blood cancer patients and survivors, and identifies factors that contribute to these barriers – factors that can be addressed through policy reform and changes in healthcare practice. The Executive Director will have both operational and scientific oversight of this Program.  The primary responsibilities include providing intellectual and organizational leadership to shape the funding priorities, develop funding announcements, make grant awards and manage a diverse portfolio of research grants, and evaluate program activities to further the strategic direction of the program.  The Executive Director will also be responsible for working with others at LLS to seek external funding to expand this new program and for presenting on the program’s progress and accomplishments, internally and externally. Further, the individual in this role will provide critical guidance for, and, in some cases oversight of, commissioned research studies, particularly those that focus on cost of and access to care, working in partnership with colleagues in LLS’s Office of Public Policy.  The Executive Director will help to shape the future direction of both intramural and extramural health services research at LLS.

As a valued member of LLS, you are eligible for a comprehensive benefits package. Our offerings include medical, dental, and vision insurance; life insurance; flexible spending accounts; a 403b retirement plan along with generous paid time off. In addition, we observe federal paid holidays throughout the year, and offer a wellness program and an employee assistance program.

Additional Position Information

Reports to: Senior Vice President, Education, Services, & Health Research Teams; dotted line to Vice President, Public Policy Leads: The Equity in Access Research Program Supervises: Equity in Access Research Program Manager

All LLS employees are required to provide proof of vaccination for COVID-19 before beginning work at LLS unless a valid medical, religious, or other exemption is approved consistent with applicable law.

Responsibilities

Program Development

  • Stay abreast of health services literature in relevant areas and identify key gaps in evidence pertaining to modifiable factors that contribute to inequitable access to care for blood cancer patients and survivors, evidence that can inform policy and practice; lead the develop of systematic evidence reviews.
  • Develop new Requests for Proposals (RFPs) based on identified gaps in evidence and with input from subject matter experts nationally; RFPs will be grounded in the literature, accurately frame the problem(s) and outline key research questions to be addressed.
  • Work with colleagues internally and externally to ensure broad dissemination of and good response to Program RFPs.
  • Maintain knowledge of the funding opportunities of private foundations and federal agencies that support health services research within the cancer space.
  • Assist in building multi-year strategic plans and budgets for the Program.
  • Write grant proposals for corporate and individual donors to increase funding available for the Program; present to potential donors and report on progress to those who have provided funding.
  • Assist LLS colleagues in conceptualizing and managing commissioned research focused on cost of care and other policy issues to guide existing efforts and inform the development of new priorities.
  • Contribute to the conceptualization and implementation of health services research that is being carried out collaboratively with external academic investigators.
  • Manage the Program Manager in tasks that will support all Program efforts and will facilitate efficient and effective communication and coordination with colleagues internal and external to the organization.

Grants Portfolio Management

  • Respond to questions from potential grantees about the Program and specific RFPs.
  • Screen letters of intent; work with colleagues internally to determine which investigators should be invited to submit full proposals for peer review.
  • Oversee the full proposal peer review process, including identifying and inviting the most appropriate grant reviewers, maintaining a database of reviewers, tracking reviews (qualitative feedback and scores), identifying review meeting chairs and managing all aspects of the review meeting, and reporting on the outcomes of the review process; recommend process changes as relevant.
  • Work closely with LLS’s grants administration staff to address questions and concerns of grant recipients’ institutions, distribute letters of commitment, finalize grant agreements, and ensure that grant recipients provide timely and complete progress reports.
  • Track and report on types of grant submissions and applicants, and on accomplishments of funded grantees based on their progress reports; follow up with grantees to obtain additional information as needed.
  • Compile all Program data to develop reports for internal and external audiences that capture program success and identify areas for improvement; this includes preparing presentations for the LLS National Board of Directors and Board Committees.

Dissemination of Program Accomplishments

  • Identify the kinds of knowledge emerging from research grants that can support LLS’s own work and learning among grantees, researchers, policymakers, practitioners, and field leaders, as well as the formats that would best support their intended use (e.g., policy briefs, infographics, data charts, etc.).
  • Convene panels of grantees and experts to share knowledge learned through this Program; work with colleagues to draw interest from media, academics, and policymakers in these panels as relevant.
  • Represent LLS at conferences, symposia, etc. to develop relationships, enhance expertise, and to showcase LLS’s leadership in this space.
  • Participate in the writing of manuscripts for publication in peer-reviewed journals.
  • Assist with other departmental and cross-departmental projects as requested.

Qualifications

Education & Experience Requirements:

  • Doctorate in a relevant discipline, such as health economics, health services research, health policy, population health sciences, epidemiology and/or sociology.
  • Demonstrated expertise in health systems and equity-focused research.
  • At least seven years of relevant experience focused wholly or in part on cancer; at least three years of relevant experience should be post-doctoral.
  • Experience managing philanthropic grant funding preferred.

Additional Position Requirements:

  • Excellent judgment, critical thinking and problem-solving skills.
  • Experience writing and submitting research grants related to equity and access to care.
  • Strong familiarity with current research on cost of care, particularly within oncology; ideal candidate will have strong understanding of the U.S. insurance system, including Medicare and Medicaid.
  • Exceptional project management, prioritization, and planning skills, with demonstrated success producing high-quality, on-time deliverables, with attention to detail and accuracy.
  • Experience working in multi-disciplinary, cross-functional teams and effectively collaborating with a range of stakeholders.
  • Sound judgment and maturity, exemplified by consistent professionalism in dealing with individuals at all levels, both internally and externally.
  • Outstanding written and oral communication skills, as well as strong presentation skills with the ability to present data in a simple and straightforward way for non-technical audiences.
  • Documented contributions to published, peer-reviewed manuscripts.
  • Highly proficient in the use of Microsoft Office.

Physical Demands & Work Environment:

  • Physical demands are minimal and typical of similar jobs in comparable organizations.
  • Work environment is representative and typical of similar jobs in comparable organizations.

Disclaimer

The statements herein are intended to describe the general nature and level of work being performed by employees, and are not to be construed as an exhaustive list of responsibilities, duties, and skills required of employees. Furthermore, they do not establish a contract for employment and are subject to change at the discretion of the Company. Reasonable accommodations may be made to enable individuals with disabilities to perform the essential functions. Candidates must be legally authorized to work in the US and LLS does not provide immigration sponsorship. LLS provides equal opportunities to all employees and applicants, and it complies with all applicable laws which prohibit discrimination and harassment in the workplace. Discrimination or harassment based on sex, gender, gender identity and expression (including transgender status), pregnancy, sexual orientation, age, race, color, creed, national origin/ancestry, citizenship, religion, genetic predisposition or information, physical or veteran status, or any other characteristic protected by law is prohibited.